12th May is Fibromyalgia Awareness Day.
I am not sure many of you know I suffer from this disease since 7 years.
Fibromyalgia: The Invisible illness
Fibromyalgia is an invisible illness, like a termite it weakens everything inside while reflecting no change on the outside!
Not many people understand the horror of this condition- the day in and day out of pain we live through and the dignity with which we live it.
A list of symptoms can include:
- Severe Insomnia
- Muscular Pain and stiffness,
- Muscle Fatigue
- Mental fog and absent-mindedness, mental blankness and memoirs lapses
- GI issues- cramps, bloating, gas, indigestion, diarrhoea, constipation
- Stress is the result or the cause
- Depression is a result.. try living in pain for months and years together
- Arthritis-like symptoms. Can't hold a cup on certain days.
- Intense body heat due to inflammation of the muscles
- Irritability due to fatigue
- Muscular Twitches and spasms
The few suffering from this condition I know goes about life with dignity. We try scores of medications, consume hundreds of Tylenol or Motrin. There is not a day in seven years I have been symptom-free. There is not a day I stop fighting to have a life and not be defeated by it
We don't grudge people who can't spare time to help out, say a kind word, make a phone call, bring us a meal as many days we lie in bed. Many times we don't want it to affirm our ability to take care of ourselves.
At times we put up with snubs, lack of compassion, sarcasm and ill will from so called family and friends.
And we see the bright side somehow; somehow we create, take care of our families, help the community when we can and keep smiling because as Madhavi says- there is so much to smile about. We are alive!
The Invisible illness: A Monster on the inside
You see, most people don't know we have this condition. That's to our credit. It is a monster on the inside.
Our kid's lives don't stop because of it. We keep it going somehow. We don't give up.
So somehow if you hear of someone suffering from this disease, stop to think it is cancer that does not kill. It just tortures without final release. Say Bravo to the will power that these people have. Allow them latitude for their so-called failings. Because they've succeeded in getting up that day and doing the best they can.
I applaud Madhavi Nade for starting this facebook page. And greatly look forward to creating an awareness and a support group here in Austin along with her. And if you can, like Madhavi's page.